The Official Real Life Happens PP Member Support Thread

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Aloyouis said:
PetScan on Monday. Hip biopsy sometime this upcoming week. Need to be back in remission. If yes, will likely start stem cell transplant process at Karmanos in coming weeks. I will get my own immune system the same as it was the moment I was born. Decisions, decisions...

If I am not in remission, I will return to additional an 6-8 weeks chemo and continue to try to get to remission. May add targeted radiation if that is needed/proper. Then test again. If in remission? Stem cell transplant. If not? Different discussions on EOL and what can be done to extend my useful life. In other words, slow the lymphoma down and add a few weeks/months.

In the meantime, I will continue to live my life as normally as possible just as I have from the start. It is the only way to do it. Lymphoma is called the "but you don't look sick" cancer for a reason. I don't look nor act sick, especially in public. It is a blessing as it makes things easier on my family and friends.

Nitty gritty time is approaching. Positive vibes and especially prayers are welcome.
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How many times do I have to say, you got this.
Just start thinking about better ways to improve your golf game.
Ok, I'll send them out. What harm will it do? :rofl:
 
Aloyouis said:
PetScan on Monday. Hip biopsy sometime this upcoming week. Need to be back in remission. If yes, will likely start stem cell transplant process at Karmanos in coming weeks. I will get my own immune system the same as it was the moment I was born. Decisions, decisions...

If I am not in remission, I will return to additional an 6-8 weeks chemo and continue to try to get to remission. May add targeted radiation if that is needed/proper. Then test again. If in remission? Stem cell transplant. If not? Different discussions on EOL and what can be done to extend my useful life. In other words, slow the lymphoma down and add a few weeks/months.

In the meantime, I will continue to live my life as normally as possible just as I have from the start. It is the only way to do it. Lymphoma is called the "but you don't look sick" cancer for a reason. I don't look nor act sick, especially in public. It is a blessing as it makes things easier on my family and friends.

Nitty gritty time is approaching. Positive vibes and especially prayers are welcome.
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Consider it done, added prayers.
 
To anyone here to believes in prayers, I need a bunch of them atm. My father in law( my dad since I lost my dad at the age of five) is having open heart surgery tomorrow. He i s 82. They were going to go through his leg but changed it to what it is now. Prayers for him, my mother in law, hubby and my brother in law as well. Hubby has left to spend the next week and a half. Once that is over, we will assess how dad is doing. It will be my turn to go and help my in laws. But I am worried due to his age and what they are doing which is replacing a valve. And of course I am watching a show on tv and that came up and just made me more concern. Dad's name is James.

I thank you in advance for what will be a long journey. Give us strength.

Plus, to all those who have major things going on and have placed them in this thread, I have read them but may not have replied. But you are all in my daily prayers as well.
 
Muse said:
To anyone here to believes in prayers, I need a bunch of them atm. My father in law( my dad since I lost my dad at the age of five) is having open heart surgery tomorrow. He i s 82. They were going to go through his leg but changed it to what it is now. Prayers for him, my mother in law, hubby and my brother in law as well. Hubby has left to spend the next week and a half. Once that is over, we will assess how dad is doing. It will be my turn to go and help my in laws. But I am worried due to his age and what they are doing which is replacing a valve. And of course I am watching a show on tv and that came up and just made me more concern. Dad's name is James.

I thank you in advance for what will be a long journey. Give us strength.

Plus, to all those who have major things going on and have placed them in this thread, I have read them but may not have replied. But you are all in my daily prayers as well.
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Sending best wishes and prayers to James.
 
Muse said:
To anyone here to believes in prayers, I need a bunch of them atm. My father in law( my dad since I lost my dad at the age of five) is having open heart surgery tomorrow. He i s 82. They were going to go through his leg but changed it to what it is now. Prayers for him, my mother in law, hubby and my brother in law as well. Hubby has left to spend the next week and a half. Once that is over, we will assess how dad is doing. It will be my turn to go and help my in laws. But I am worried due to his age and what they are doing which is replacing a valve. And of course I am watching a show on tv and that came up and just made me more concern. Dad's name is James.

I thank you in advance for what will be a long journey. Give us strength.

Plus, to all those who have major things going on and have placed them in this thread, I have read them but may not have replied. But you are all in my daily prayers as well.
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Prayers, Muse. 🙏
 
Muse said:
To anyone here to believes in prayers, I need a bunch of them atm. My father in law( my dad since I lost my dad at the age of five) is having open heart surgery tomorrow. He i s 82. They were going to go through his leg but changed it to what it is now. Prayers for him, my mother in law, hubby and my brother in law as well. Hubby has left to spend the next week and a half. Once that is over, we will assess how dad is doing. It will be my turn to go and help my in laws. But I am worried due to his age and what they are doing which is replacing a valve. And of course I am watching a show on tv and that came up and just made me more concern. Dad's name is James.

I thank you in advance for what will be a long journey. Give us strength.

Plus, to all those who have major things going on and have placed them in this thread, I have read them but may not have replied. But you are all in my daily prayers as well.
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You got it girlfriend. Keep us updated.

~Dee~
 
Muse said:
To anyone here to believes in prayers, I need a bunch of them atm. My father in law( my dad since I lost my dad at the age of five) is having open heart surgery tomorrow. He i s 82. They were going to go through his leg but changed it to what it is now. Prayers for him, my mother in law, hubby and my brother in law as well. Hubby has left to spend the next week and a half. Once that is over, we will assess how dad is doing. It will be my turn to go and help my in laws. But I am worried due to his age and what they are doing which is replacing a valve. And of course I am watching a show on tv and that came up and just made me more concern. Dad's name is James.

I thank you in advance for what will be a long journey. Give us strength.

Plus, to all those who have major things going on and have placed them in this thread, I have read them but may not have replied. But you are all in my daily prayers as well.
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Prayers to your Dad. 🙏
 
Muse said:
To anyone here to believes in prayers, I need a bunch of them atm. My father in law( my dad since I lost my dad at the age of five) is having open heart surgery tomorrow. He i s 82. They were going to go through his leg but changed it to what it is now. Prayers for him, my mother in law, hubby and my brother in law as well. Hubby has left to spend the next week and a half. Once that is over, we will assess how dad is doing. It will be my turn to go and help my in laws. But I am worried due to his age and what they are doing which is replacing a valve. And of course I am watching a show on tv and that came up and just made me more concern. Dad's name is James.

I thank you in advance for what will be a long journey. Give us strength.

Plus, to all those who have major things going on and have placed them in this thread, I have read them but may not have replied. But you are all in my daily prayers as well.
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You have them!
 
Muse said:
To anyone here to believes in prayers, I need a bunch of them atm. My father in law( my dad since I lost my dad at the age of five) is having open heart surgery tomorrow. He i s 82. They were going to go through his leg but changed it to what it is now. Prayers for him, my mother in law, hubby and my brother in law as well. Hubby has left to spend the next week and a half. Once that is over, we will assess how dad is doing. It will be my turn to go and help my in laws. But I am worried due to his age and what they are doing which is replacing a valve. And of course I am watching a show on tv and that came up and just made me more concern. Dad's name is James.

I thank you in advance for what will be a long journey. Give us strength.

Plus, to all those who have major things going on and have placed them in this thread, I have read them but may not have replied. But you are all in my daily prayers as well.
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Hey Muse,

Will pray for your father in law. As you know, I had open heart valve replacement last March (Bentall Procedure). Shoot me a PM with any Q's related or if you would like to have a conversation just let me know and I will send you my number. I will say that these things are quite intrusive, but common enough now that the experts have the processes down pat.

I hope everything goes according to plan.

Jim
 
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Last week one of my high school friends passed away, heart attack. Not looking for any sympathy, it is what it is. This kind of thing is happening a lot more now though. Weird. His wake/memorial is this weekend.

Life is short, live it up!
 
Big/Sky/Fly said:
Last week one of my high school friends passed away, heart attack. Not looking for any sympathy, it is what it is. This kind of thing is happening a lot more now though. Weird. His wake/memorial is this weekend.

Life is short, live it up!
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Sorry sad is sad….. We lost an employee this week to cancer loss sucks

~Dee~
 
Results from Monday's PetScan:

Clean. Fucking clean! Pass Go! Collect $200. On to the Stem Cell transplant next steps.
1738385331213.png

1738385425143.png

We have agreed that I should stay on my current chemo/immunotherapy protocol until I undergo the stem cell transplant process. My previous remission and then really fast relapse is cause for concern as to the severe aggressiveness of my lymphoma subtype I agree completely with the request of my oncology team. In fact, I went to the meeting today hoping to be clean, and if so, intending to suggest I stay on the chemotherapy longer. Tired and nauseated is a great way to go through life, lol. Unless you've been through it, you don't know how funny and true that last sentence is.

I'm a really happy camper.
 
Aloyouis said:
Results from Monday's PetScan:

Clean. Fucking clean! Pass Go! Collect $200. On to the Stem Cell transplant next steps.
View attachment 32979

View attachment 32980

We have agreed that I should stay on my current chemo/immunotherapy protocol until I undergo the stem cell transplant process. My previous remission and then really fast relapse is cause for concern as to the severe aggressiveness of my lymphoma subtype I agree completely with the request of my oncology team. In fact, I went to the meeting today hoping to be clean, and if so, intending to suggest I stay on the chemotherapy longer. Tired and nauseated is a great way to go through life, lol. Unless you've been through it, you don't know how funny and true that last sentence is.

I'm a really happy camper.
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This is really good news. Get those clubs all cleaned up, you'll be back on course before too long.
 
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