The Official Real Life Happens PP Member Support Thread

Sounds like one last but significant hurdle that you need to clear. The finish line is in sight for sure. Wishing you all the best and look forward to you celebrating the end of it all.
Not sure I mentioned this before, I might have, but I have a friend who also recovered from this, had the stem transplant and all, probably 15 years ago. He also decided to retire at that time, and has done well ever since.
Keep the faith......

You had mentioned it but I am ALWAYS glad to hear about his recovery over and over and over.... :beer:
 
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So once you get this thing licked, and you will lick this thing, you will have an advantage on the golf course.
While everyone else will be dragged down by playing in the heat and humidity, you will fresh.







OK, it doesn't work that way. But if you think you have an advantage, you'll feel more confident. :D

I will talk about that as if it is true on the first tee. My buddies have no idea... :ROFLMAO:
 
Thank you for sharing this journey with us. You probably think by doing so it's helping you but I assure you, I've been able to offer words of encouragement to folks in my personal life as a result of the details you've shared along the way. That makes my day. You have no idea how much that makes me happy.

That being said, don't bother with Super Bowl 51. The Pats played so bad I turned that shit off at halftime. :coffee: I did too. But I have a feeling about the 2nd half... I just have a feeling...:ROFLMAO:
 
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You really do inspire us, as do others and what they tackle (it is a football board). Thanks for these updates. You got this.
Thank you. Win/Win I guess because it is very cathartic for me. I get a little time to deal with new news and decide how I feel about it. Then I tell all of you which helps it stick in my head. :)
 
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So once you get this thing licked
lick GIF
 
Stem cells harvested last Tuesday. 3.7 million is the number I believe. Well, it was 3.7 something. They said they needed to get 2.0 of something. So, whether it was millions or zillions, they got enough in one 6 hour session.
View attachment 33833

The chemo has worn off mostly and the stem cell inducing drugs have worn off. Today is the best I have felt in 6 months - at least.

I get a week off and go in to Karmanos next Wednesday to start 6 days of chemo that they tell me is 5 times stronger than what I just finished and it will wipe out my immune system. I will get my stem cells back (cleaned, pressed and folded 🤪) on the 21st EDIT: the 27th. They tell me this will be my new birthday or if I want, a second birthday. I am going with the latter.

Then we wait to see if the little buggers take root. They should. After that, it is a waiting game: how long for me to recover from the chemo and how long it takes for the cells to get to a high enough level that I can go home. Should be about a month. I am told that if all goes well, I will be topping golfs balls off of the tee by August.

Docs have penned the odds at 65% chance of cure. 35% chance of relapse. I am thinking positive thoughts and plan to watch Super Bowl 51 the day I go into Karmanos. 😬

Did you know that Karen Guregian had stem cell transplant for Hodgkins Lymphoma back in 1989? Worked for her. God bless her.

Everything going as expected. Stem cells transplanted back into me 2 days ago. I am officially on "Day +2".

I feel like f*cking dog shit. The best way I can describe it is it is 10x worse than the worst hangover I ever had (and I have had a few doozies). Combine this with a level of body anxiety that I can't describe accurately. This will slowly get worse until about day +6 or +7 when my WBC and lymphocyte counts start to come back up. This is normal. Both the Stem cells and the preservative they are frozen in make you ill post transplant. It is crazy. As they are going back in through a "pic line" in my left arm straight into my left ventricle, you can taste them and the preservatives. To me it tasted like rotten raw fish with ketchup mixed in. They have really strong anti-nausea medication which works, kinda. The anti-nausea meds are causing the body anxiety. Honestly, I think the body anxiety is worse than throwing up more.

I need targets for just about everything so I have set my sights on getting the F out of here by Day +14. That will be 24 days total for this. This will be back to our home only for another month or so. Hard to put dates on things as my "counts" will dictate what/when things occur.

Friends have decided that we are taking a group to St. Maarten next February and have asked that I get it researched/organized. This because they want to go, as do the wife and I and I suspect to give me something to do with the miserable down time. Right up my ally. My best friend just started going through what will most assuredly be a miserable separation/divorce from his wife and declined to be part of the group. I asked him to come alone or bring a brother or whatever. He said no. I told him he may not get another chance with me on something like this. That pissed him off much more than I thought it would and yes, I know realize just how dirty that was of me. He is coming 😬. I am planning to find him someone to bring and if he says no I will just fly her there and he can deal with it there. My wife doesn't like this idea one bit. Funny, but having your heart stopped three times, getting cancer twice, open heart surgery and now this month long transplant, all in 30 months, will alter just how many f*cks you give. Very few. I may not have any left. Piggy and Mikie probably have noticed an uptick of my opinions on FB lately, LOL. Patswin for sure has on X.

Wow, that last paragraph was a massive left turn. My brain...

Thanks for letting me say some of these things I don't tell the people around me. Always has been cathartic.
 
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Everything going as expected. Stem cells transplanted back into me 2 days ago. I am officially on "Day +2".

I feel like f*cking dog shit. The best way I can describe it is it is 10x worse than the worst hangover I ever had (and I have had a few doozies). Combine this with a level of body anxiety that I can't describe accurately. This will slowly get worse until about day +6 or +7 when my WBC and lymphocyte counts start to come back up. This is normal. Both the Stem cells and the preservative they are frozen in make you ill post transplant. It is crazy. As they are going back in you can taste them and the preservatives. To me it tasted like rotten raw fish with ketchup mixed in. They have really strong anti-nausea medication which works, kinda. The anti-nausea meds are causing the body anxiety. Honestly, I think the body anxiety is worse than throwing up more.

I need targets for just about everything so I have set my sights on getting the F out of here by Day +14. That will be 24 days total for this. This will be back to our home only for another month or so. Hard to put dates on things as my "counts" will dictate what/when things occur.

Friends have decided that we are taking a group to St. Maarten next February and have asked that I get it researched/organized. Right up my ally. My best friend is just started going through what will most assuredly be a miserable separation from his wife and declined to be part of the group. I asked him to come alone or bring a brother or whatever. He said no. I told him he may not get another chance with me on something like this. That pissed him off much more than I thought would and yes, I know realize just how dirty that was of me. He is coming 😬. I am planning to find him someone to bring and if he says no I will just fly her there and he can deal with it there. Funny, but having your heart stopped three times, getting cancer twice, open heart surgery and now this month long transplant will slightly alter just how many f*cks you give. Very few. I may not have any left. Piggy and Mikie probably have noticed an uptick of my opinions on FB lately, LOL. Patswin for sure has on X.

Wow, that last paragraph was a massive left turn. My brain...

Thanks for letting me say some of these things I don't tell the people around me. Always has been cathartic.
Thanks for the update Jimmy. That whole thing sounds like Vedarian Lowe trying to block Bradley Chubb.😀
I'm heading to the hospital Monday morning for esophagus surgery. Then I'll be on a total liquid diet for 2 weeks. I was feeling a little sorry for myself. But your post made me feel like a total pussy.
Hang in there guy. In 24 days the greens will just be starting to firm up.👍👍
 
Thanks for the update Jimmy. That whole thing sounds like Vedarian Lowe trying to block Bradley Chubb.😀
I'm heading to the hospital Monday morning for esophagus surgery. Then I'll be on a total liquid diet for 2 weeks. I was feeling a little sorry for myself. But your post made me feel like a total pussy.
Hang in there guy. In 24 days the greens will just be starting to firm up.👍👍

Thanks PP. My middle son played today. In Michigan. He was sending me pictures all afternoon. Weird seeing your "kid" behaving like an adult on the golf course. Made me feel really old. I can't wait t get out there with him later this summer. I. CAN'T. WAIT.
 
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Thanks for the update Jimmy. That whole thing sounds like Vedarian Lowe trying to block Bradley Chubb.😀
I'm heading to the hospital Monday morning for esophagus surgery. Then I'll be on a total liquid diet for 2 weeks. I was feeling a little sorry for myself. But your post made me feel like a total pussy.
Hang in there guy. In 24 days the greens will just be starting to firm up.👍👍
Good luck tomorrow your in my thoughts keep us posted

~Dee~
 
Everything going as expected. Stem cells transplanted back into me 2 days ago. I am officially on "Day +2".

I feel like f*cking dog shit. The best way I can describe it is it is 10x worse than the worst hangover I ever had (and I have had a few doozies). Combine this with a level of body anxiety that I can't describe accurately. This will slowly get worse until about day +6 or +7 when my WBC and lymphocyte counts start to come back up. This is normal. Both the Stem cells and the preservative they are frozen in make you ill post transplant. It is crazy. As they are going back in through a "pic line" in my left arm straight into my left ventricle, you can taste them and the preservatives. To me it tasted like rotten raw fish with ketchup mixed in. They have really strong anti-nausea medication which works, kinda. The anti-nausea meds are causing the body anxiety. Honestly, I think the body anxiety is worse than throwing up more.

I need targets for just about everything so I have set my sights on getting the F out of here by Day +14. That will be 24 days total for this. This will be back to our home only for another month or so. Hard to put dates on things as my "counts" will dictate what/when things occur.

Friends have decided that we are taking a group to St. Maarten next February and have asked that I get it researched/organized. This because they want to go, as do the wife and I and I suspect to give me something to do with the miserable down time. Right up my ally. My best friend just started going through what will most assuredly be a miserable separation/divorce from his wife and declined to be part of the group. I asked him to come alone or bring a brother or whatever. He said no. I told him he may not get another chance with me on something like this. That pissed him off much more than I thought it would and yes, I know realize just how dirty that was of me. He is coming 😬. I am planning to find him someone to bring and if he says no I will just fly her there and he can deal with it there. My wife doesn't like this idea one bit. Funny, but having your heart stopped three times, getting cancer twice, open heart surgery and now this month long transplant, all in 30 months, will alter just how many f*cks you give. Very few. I may not have any left. Piggy and Mikie probably have noticed an uptick of my opinions on FB lately, LOL. Patswin for sure has on X.

Wow, that last paragraph was a massive left turn. My brain...

Thanks for letting me say some of these things I don't tell the people around me. Always has been cathartic.
Thank you for the update. I hope you feel better soon…. St.Maarten is beautiful you will have a great time. You’re still in my thoughts…..

~Dee~
 
Funny, but having your heart stopped three times, getting cancer twice, open heart surgery and now this month long transplant, all in 30 months, will alter just how many f*cks you give. Very few. I may not have any left. Piggy and Mikie probably have noticed an uptick of my opinions on FB lately, LOL. Patswin for sure has on X.

Wow, that last paragraph was a massive left turn. My brain...

Thanks for letting me say some of these things I don't tell the people around me. Always has been cathartic.
You are one tough son of a bitch, Jimmy. Hang in there, my friend,
Kevin
 
You are one tough son of a bitch, Jimmy. Hang in there, my friend,
Kevin
Thanks Kev, but understand that almost everyone is when you don't have a choice. You would be too.

When push comes to shove you see people extend and defy odds and survive. My surroundings the last 2 and half years have shown me many people that are tough sons of bitches. MANY.

My nurse Andrea, the one taking care of my sick ass all last night, I found out today she has a form of non-treatable classical Hodgkin's Lymphoma. 99% the same as mine, but I was lucky so I have a shot and she doesn't. Yet, she was helping me last night clean up pans of vomit. She is stage three and stage four is coming. The docs can't do anything and she knows it. She does not have to be here, yet she gets gratification from serving others. Tough SOB doesn't even come close to doing her justice. That is all I can write for now.
 
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Thanks Kev, but understand that almost everyone is when you don't have a choice. You would be too.

When push comes to shove you see people extend and defy odds and survive. My surroundings the last 2 and half years has shown me many people that are tough sons of bitches. MANY.

My nurse Andrea, the one taking care of my sick ass all last night, I found out today she has a form of non-treatable classical Hodgkin's Lymphoma. 99% the same as mine, but I was lucky so I have a shot and she doesn't. Yet, she was helping me last night clean up pans of vomit. She is stage three and stage four is coming. The docs can't do anything and she knows it. She does not have to be here, yet she gets gratification from serving others. Tough SOB doesn't even come close to doing her justice. That is all I can write for now.
What an amazing angel she is.
 
What an amazing angel she is.
Yes. I will have her again on Tuesday. I have to think long and hard about what/how to talk with her. It is mostly quiet here at 3am except for a couple of us still awake for reasons. She has made a point of talking with me twice for extended periods (20 mins+) on different nights. She doesn't know I know.
 
Yes. I will have her again on Tuesday. I have to think long and hard about what/how to talk with her. It is mostly quiet here at 3am except for a couple of us still awake for reasons. She has made a point of talking with me twice for extended periods (20 mins+) on different nights. She doesn't know I know.
That’s the meaning of life….my friend and she knows it’s very hard to explain but from a psychological point of view she excepted her fate…. She is a very exceptional person and you are very lucky to have her in your corner….

~Dee~
 
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