The Official Real Life Happens PP Member Support Thread

Got the news that I've been dreading. Got the results from the last test they could run to see if there was something reversible causing my wife's unresponsiveness and the results were negative. Unfortunately we've done and looked for everything and now we have to transition to basic comfort care. Thank you all for your support.
I'm sorry.
 
Got the news that I've been dreading. Got the results from the last test they could run to see if there was something reversible causing my wife's unresponsiveness and the results were negative. Unfortunately we've done and looked for everything and now we have to transition to basic comfort care. Thank you all for your support.

I am so sorry.
 
Got the news that I've been dreading. Got the results from the last test they could run to see if there was something reversible causing my wife's unresponsiveness and the results were negative. Unfortunately we've done and looked for everything and now we have to transition to basic comfort care. Thank you all for your support.
So very sorry….

~Dee~
 
Got the news that I've been dreading. Got the results from the last test they could run to see if there was something reversible causing my wife's unresponsiveness and the results were negative. Unfortunately we've done and looked for everything and now we have to transition to basic comfort care. Thank you all for your support.
So very sorry to here of this turn of events. I truly do understand what you are going through right now. Know that many are praying for you, your wife and your whole family. May God be merciful and help you to deal with this event. I know not your religious following but this is a prayer that help me during my fathers passing. Oh God, our heavenly Father, have pity on your children in great bodily weakness who are drawing near the gates of death. Send your dear Son to meet with them on the way, and to stay with them, or the day is now far spent, that he may comfort them with the Word of your goodness, and break with them the bread of eternal life; through your Son Jesus Christ our Lord. Amen.
 
Got the news that I've been dreading. Got the results from the last test they could run to see if there was something reversible causing my wife's unresponsiveness and the results were negative. Unfortunately we've done and looked for everything and now we have to transition to basic comfort care. Thank you all for your support.
I’m very sorry.
 
It's 5:51 AM here in Dee-Troit, Michigan (yep, I'm really in Detroit). Sleep's been playing hard to get lately. My condition keeps me on my toes with round-the-clock care from multiple angles. That pretty much rules out a solid night's rest. To top it off, the pump on my smaller IV pole decided to throw a party with four false alarms last night. So, I've been up since 3 AM, a bit grumpy but hanging in there.

The docs tell me every day that I'm "on track" with my body's recovery from the stem cell transplant process. Today marks day +8. Days +3, 4, 5, and 6 were a real challenge—probably the toughest I've faced in the last three years. Yep, that intense. It’s been a bigger hurdle than even the first week after open-heart surgery last March. This process just keeps coming at you, no breaks to catch your breath. Gotta hand it to Karmanos, though—they nailed the timeline for Lynn and me before the transplant. They were spot-on about when things would happen, how I’d react, and how rough each day might feel. With past procedures, I’ve managed to outpace the recovery schedule, sometimes by a lot. Late last night, I think I hit a turning point. I got up, went to the bathroom, came back, and sat down without feeling like I was about to throw up or pass out.. Putting your own stem cells back in sounds like a breeze compared to dealing with rejection drugs from someone else’s cells. Fingers crossed this works—I’m not exactly thrilled at the idea of doing it again but tougher.

A few times a day, I get these bursts where I feel about 25% of normal. Sleep’s still off the table, but it’s enough to have my wife and kids visit. Sometimes it hits out of nowhere, so I use those moments to tackle the bills. It’s a small win, but it feels good to do something for my family. Lynn thinks I shouldn’t “waste” my good spells on that—ha, men and women, right? After the bills are paid, I check out the chaos on Kevin’s FB page and toss in a few zingers of my own. I was right, by the way—zero fucks given. Recently accepted a FB friend request from another very well respected and liked PP-er. I think she probably regrets sending it.🙁 Funny thing: unless you’re in my tight-knit crew of maybe 12 to 15 people—you’d never guess the last three years have been a rollercoaster just from my Facebook. But here on Patriots Planet, I’ve laid it all out there when the moment feels right.

I’m optimistically chewing ice and sipping on ice water. Been at it since about 3:15 AM. What’s the big deal? No nausea. I’m praying that corner’s been turned. The fatigue corner and the bone pain corner are still lurking somewhere over the horizon, I think, but I’m ready for those two to throw in the towel soon too. Another hilarious “feature” of this process? Extreme bloating. I feel like I’m gonna look like my body’s just hanging on my bones once I get home and ditch the constant thousand-milliliter bags of fluid. They’re literally 24/7. I reckon I’ll end up looking like that former Secretary of State from Trump’s first term—can’t recall his name (yep, another “feature”). If you watch current events stations, you can’t miss him making the rounds. Ready for this? I’m up over 30 pounds in fluids. How do I know it’s all fluids? Because I haven’t eaten a thing since day +3. I’m gonna need an extension cord in the bathroom when I get home—even the latest iPhone Pro battery won’t survive the marathon I’ll be running in there dumping all this. And yeah, that’s gross and probably TMI, but I shared it anyway. Oh, and the other thing? Mike Pompeo. My freaking brain—ugh.

I’m past the midpoint of this ordeal, so I should be home in the next two weeks. I’ll be hitting up PXG when my strength’s back, and then heading to SC with my son E (Ethan) in late May. All booked—an early birthday present for E (my son Ethan) and a life present for me. I can’t wait to sprawl out on the couch when I get home and watch Seamus figure out I’m home. He’s been camping out in my office lately because he can see the end of the driveway and part of the road. We don’t deserve dogs.

I need a break, so I’ll wrap it up here: Thanks for listening. Yeah, yeah, I know—reading, but it feels like listening to me.

PS - Last thing for now: I don’t write these for pity. I’m proud of how I’ve handled this crap. So, please don’t think that’s what these posts are about. Also, I will win.
PPS - I’m using Siri and AirPods (4 ANC) to dictate this. It’s gotten way better. Add in the near-zero noise here at this hour, and it’s smooth sailing. I also used Grok to tidy up the spelling and grammar mistakes—I make way too many.

- Jimmy
Dipping into nostalgic music:

Go Jimmy, go!!!
 
So very sorry to here of this turn of events. I truly do understand what you are going through right now. Know that many are praying for you, your wife and your whole family. May God be merciful and help you to deal with this event. I know not your religious following but this is a prayer that help me during my fathers passing. Oh God, our heavenly Father, have pity on your children in great bodily weakness who are drawing near the gates of death. Send your dear Son to meet with them on the way, and to stay with them, or the day is now far spent, that he may comfort them with the Word of your goodness, and break with them the bread of eternal life; through your Son Jesus Christ our Lord. Amen.
Ditto. Sad and sorry. Remember to also take care of yourself.
 
My wife passed away peacefully this morning. I was there at her side. I am devastated but also grateful that she's not in pain or suffering anymore. I will miss her dearly.
 
My wife passed away peacefully this morning. I was there at her side. I am devastated but also grateful that she's not in pain or suffering anymore. I will miss her dearly.

I hope everything goes as smoothly and as peacefully as possible for you and your loved ones during this time.
 
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My wife passed away peacefully this morning. I was there at her side. I am devastated but also grateful that she's not in pain or suffering anymore. I will miss her dearly.
You and your loved ones are in my thoughts I’m so sorry for your loss.

~Dee~
 
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My wife passed away peacefully this morning. I was there at her side. I am devastated but also grateful that she's not in pain or suffering anymore. I will miss her dearly.
So sorry for your families loss. No words that can help. But keeping you all in prayers.
 
My wife passed away peacefully this morning. I was there at her side. I am devastated but also grateful that she's not in pain or suffering anymore. I will miss her dearly.
So sorry for your loss. As you were saying, she’s no longer suffering. My condolences go out to you and your family also.
 
My wife passed away peacefully this morning. I was there at her side. I am devastated but also grateful that she's not in pain or suffering anymore. I will miss her dearly.
I wish I had the words to bring you any kind of comfort at all. I can't possibly echo Boston Tim's advice enough, please take care of yourself right now and lean on others who offer their support.
 
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